Loving Lucas - The Journey of Our Little Man with Down Syndrome

Dear Family & Friends, Our little Lucas is a whole 5 months old! We hope you all have been enjoying your summer. We've had some small trips to the hospital, but for the most part Lucas has been very healthy. He may have some minor inflammation in his lungs from aspirating while eating which is a common ailment with DS. It's become more obvious since he got the feeding tube out last month, so I've been mostly feeding him by bottle. I'm anxious for the next feeing appointment because if it continues to be an issue, then he'll have to have the tube re-inserted. So, for now, I'll say I'm enjoying the break. At 5 months Lucas has found his thumbs and hands and is delightfully entertained by sucking on his hands several times a day. His neck continues to get stronger. I keep having in mind that the girls were sitting up by 6 months old and I don't know that he'll be there by 6 months, but he was also born about a month early so we can give him a break....

Dear Family and Friends,  I am happy to report that Lucas' hospital stays are definitely getting less often and less severe. On July 22nd, 2024 I took Lucas in because he had spit up a bottle of formula I gave him (which was out of the norm because I've been feeding him breast milk, but my supply was low that day). Spitting up is definitely not uncommon in babies, but was out of the ordinary for him and because of his conditions his pediatrician's office suggested we have someone "lay eyes" on him. He didn't just spit up, he was looking a little lathargic and wasn't eating even some breast milk so the formula must have upset his stomach. We thought this would be a simple check up so we just went to the Multicare Hospital ER very close to our house, but they were worried about a few things with him and ended up calling Children's hospital anyway (so I should have just gone to Children's). They also tried to take blood because the wanted to get labs,...

4/13/24 Dear Family and Friends,  I decided not to e-mail this out because he was JUST in the hospital a couple days ago for that short stay and I didn't want to overload people. Lucas is 4 months old! I got some cute pics and just wanted to highlight him. I can't WAIT til he's a bit bigger. 😊