Are We Done Yet? New Surgery Date 7/16/25

Hello Family and Friends,

I'm just done. Are you done hearing about Lucas going into the hospital again? Man, I feel like a broken record! :)

I say this with some sass. Of course, I love the little guy, but the hospital visits have become very tedious.

I haven't shared every visit, so as not to bug people and also because some of the visits have been short and manageable.

Here's what our life has looked like since the beginning of April:

Long story, short, Lucas' surgery date has been pushed back for the 3rd time so it is now 7/16/25.

And yes, you are reading the calendar above correctly, I am currently in the hospital as I write this.

The latest trips to the hospital have been him fighting off 2 viruses Para-fluenza and our good friend Rhino virus.

We were at Children's Wednesday-Friday last week for a couple nights while he fought off a gnarly fever and came back in again Sunday night and are hopefully going home tomorrow (6/3, Isabelle's 8th birthday) because before he kicked the viruses completely he developed a very snorkely cough and congestion. I think he got through the worst of that today, he slept a lot and seems better this evening. Not breathing so hard, which would enable us to go home and ride out the tail end of the symptoms of these viruses.

I have gone beyond what I thought I could tolerate. I have said to myself, "I don't think I can go back to the hospital one more time" and I did. I have lost so much sleep and been exhausted and continue to get up out of bed to rock and hold him when he cries. I have felt pain in my back legs and neck from holding him and rocking him through the worst of his persistent discomfort and I keep lifting him and doing it despite the pain.

This is where God has been stepping in. I have been pressing into God and assuring Him that I am serious, dead serious, about giving my life up to Him and having Him work through me and show me what He wants to do with the remainder of my humble life. I'm asking him daily and momentarily to show me how to empty myself of everything I am and allow Love to flow. This is apparently what it looks like.

My tool for pressing into God is to notice every thought & emotion I have. Acknowledge it, bring total love and acceptance to it and surrender it to God. THIS and ONLY THIS has been what has sustained me. Instead of being in tears all the time (and there has been some tears) I have some how witnessed myself persevering. I AM learning, I am having powerful conversations of what's possible with LOVE profoundly present in our lives through suffering and in times of abundance.

I am hoping for abundance and persevering in Love through suffering. Surrender, surrender, surrender.... this is the way. :)

This was a brief moment today. He was fussy and crabby for most of the day, but that smile when he is happy contains all the love and hope and inspiration I could ever want for my life.

Thank you to all who send messages and reach out to check on how we are. Thank you to all who are reading this now and connecting to us in some way. My deepest prayer is that Love flows and it continues to be my profound privilege to offer my suffering, my love, my physical body, my emotions and thoughts to God for this child and for my family and friends to connect and be some kind of conduit of Love in this world for however long I am here.

I love you all!

Christine