Daily Update: Week 4 (Updated Monday 5/27)

 Dear Family and Friends,

We're trucking along towards being discharged. They removed the High Flow air support completely today. I am looking forward to talking to the doctors tomorrow. I'm gonna see if it's possible to perhaps get discharged tomorrow and if not, really push for Wednesday. Lucas is looking great!

To Get Discharged:

🗹 Move feeding tube to his stomach

🗹 Reduce his High Flow down to 2L/min

🗹 Remove High Flow completely - the plan for tomorrow

❏ Monitor for 48 hours - will want to make sure he looks good for more than 24 hours to be sure he can go home

❏ Get a swallow study done

 


Comments

  1. AnonymousMay 28, 2024 at 12:05 PM

    You are still in my prayers! Hoping you will all be home soon ❤️
    Beth

    ReplyDelete

Post a Comment

Popular posts from this blog

Fluid Found - 29 Weeks

Image
Update as of Tuesday, January 30th, 2024  Hey guys,  If you are seeing this, thank you so much for being here. I feel like I got sucker punched in the stomach today. Summary They have found fluid building in the baby's chest with the latest ultrasound. They now need to monitor me weekly to see how quickly fluid is building up. If fluid builds up to much it will also endanger my health so if I have danger signs then I'll have to have the baby early, but the earlier I have him, the more at risk he is to not survive. So the timer is on. We want to get him as close to 37 weeks as possible which is the 3rd week of March at the earliest. Details Ok, so for those of you who are interested in some details, here we go -  So, last Friday morning I saw the cardiologist. They saw the fluid around the lung and didn't think it was related to the heart. Upon further consultation of the cardiologists at Children's Hospital and my care team of 3 doctors at Maternal Fetal Medicine, it IS
Read more

Suprise! Lucas is here!

Image
3/13/24 @ 1:30pm Hey Guys, Things just got exciting real fast. I went in for a check for Lucas this morning and although his heart beat is strong, they wanted to see him moving around more and my fluid dropped to 2.5 from 3.7 on Monday.  I received directions to get to UW Labor and Delivery which is where I am now and they just finished monitoring Lucas and filling me in that they advise doing a c-section in the next hour! So here we go people! I also wrote a blog post early this morning for anyone who wants to read it, cuz I'm writing this on my phone and it'll be hard to delete. I'll send pictures once can! Love you all! Update at 3:55pm Well my phone wouldn't send the email before the c-section so now you get pictures and everything. He was born at 2:27pm. 6lbs 1oz, 18.5 in long. He did very well, doctors say he looks good! 3/13/24 Wednesday @ 4am: Here's a post I'll keep updated as we lead up to Saturday in case anyone dec
Read more

Lucas back in the Hospital

Image
Dear Family and Friends, Hello again! I am in a position of needing to ask for support and prayers again. What has started out as a common cold and a 5 day ICU stay to support Lucas' breathing has turned into a 2 week hospital stay and we have boomerang'd back into the ICU as of today. I'll put more details below for those interested, but basically I expected that he would be better after a week or so of hospital stay and now we are entering our 3rd week and it is clear I need to give up expectations and embrace this amazing opportunity to practice living in the present. Luckily it isn't hard to focus on holding little Lucas and bring my focus to gratitude for his little hands and feet and his soft head. I am also so humbled and grateful for those who have stepped up to help us with this current hospital stay! So, in an attempt to be organized - I shall  1. state why I called you all here 2. what we need in the upcoming week in case any of you are able and want to provi
Read more